Monthly Archives: September 2010

I’m writing a book – “Cystic Diagnosis”

We found out that our daughter Katie had CF on September 30 2008. Katie was 17 months old at the time. We were devastated. We were afraid. We were concerned for our child. We worried if our other child might

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CF in the news: “The fear factor in health fundraising” in CMAJ (Aug 2010)

The Canadian Medical Association Journal (CMAJ) recently published an article and two letters (see footnotes at the end of this post) that dispute (one of the letters defends the marketing) the accuracy of the ads depiction of living with CF,

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CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010)

Thanks to Cathy Gulli and Macleans for sharing this story about Ashley Donelle, a 20-something Montreal woman with Cystic Fibrosis who recently underwent a double lung transplant. The article charts Ashley’s suffering with CF, the transplant that saved her life

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Great Strides 2010 Thank You Party

Ever since Katie was first diagnosed with Cystic Fibrosis two years ago, the love and support of our family and friends has been phenomenal. We have been extremely grateful to everyone that has offered prayers, words of encouragement, friendship and

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Hello Fall and our new blog look & feel

I know that I said I’d post on this blog over the summer. I had good intentions… but… that didn’t work out so well. My apologies. Regardless… welcome to the new look and feel for BreathingAsAFamily.org. I have consolidated all

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