In our case, we have chosen to have another child. We have chosen to love this child. We have chosen to care for this child. And we have chosen to face whatever challenges come our way. And, we will embrace…

And, when I think about the larger challenge of genetic testing, it makes me wonder where do we stop? In the very near future, genetic testing will provide each of us with a window into our “genetic flaws”. I foresee…

We talked to other CF parents. One family we know decided to go ahead with more children despite the risks. Their next child was born with CF. They were plagued by feelings of guilt, pain and anguish but they, like…

Once Katie was diagnosed with CF, genetic testing was done to identify the defective genes that she adopted from Julie and I. In our case, Katie has the most common mutation, “double Delta F508”. This meant that Katie received the…

We are expecting our third child any day now. This is an exciting time for us. And, for a while, it was a difficult time as well. Why? Because the odds are 1 in 4 that this baby will be…