Blog Archives

Breathe Easy Nebulizer Mask Holder

All CF parents out there, you must check out this product: The Breathe Easy Nebulizer Mask Holder What a great device! Julie found this online and ordered one. Order total = $31.50 which includes shipping. The device even came with

Tagged with: , , , ,
Posted in cystic fibrosis

I’m writing a book – “Cystic Diagnosis”

We found out that our daughter Katie had CF on September 30 2008. Katie was 17 months old at the time. We were devastated. We were afraid. We were concerned for our child. We worried if our other child might

Tagged with: , ,
Posted in cystic fibrosis

Breathe by Matt Scales – song lyrics

Our Team Katie video for 2010 features the song Breathe, from Matt Scales, a CF patient who died from the disease in 2007 at 28 years of age. Matt’s personal struggle with CF made the song especially poignant, given his

Tagged with: ,
Posted in cystic fibrosis