We talked to other CF parents. One family we know decided to go ahead with more children despite the risks. Their next child was born with CF. They were plagued by feelings of guilt, pain and anguish but they, like…
Monthly Archives: May 2010
Team Katie – Great Strides 2010 results!
Folks, Just wanted to send out a big thank you to everyone that made this year’s Great Strides Cystic Fibrosis fundraiser a HUGE success. Julie and I continue to be overwhelmed by the tremendous outpouring of generosity and encouragement towards…
Should bad genes = no more kids? – Part 2: our circumstances
Once Katie was diagnosed with CF, genetic testing was done to identify the defective genes that she adopted from Julie and I. In our case, Katie has the most common mutation, “double Delta F508”. This meant that Katie received the…
Should bad genes = no more kids? – Part 1: background
We are expecting our third child any day now. This is an exciting time for us. And, for a while, it was a difficult time as well. Why? Because the odds are 1 in 4 that this baby will be…
Should bad genes = no more kids? – Prologue
In this series, I’ll be touching on an ethical debate within the CF community – should CF parents have more children? This is not unique to CF though. Other genetic diseases like Sickle Cell Anemia and Huntington’s Disease struggle with…
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