Monthly Archives: May 2010

Help us find a cure for Cystic Fibrosis

Folks, As many of you know, my daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time. On Sunday May 30 2010, the Canadian Cystic Fibrosis Foundation will

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Cystic Diagnosis Part 7: First clinic visit at McMaster

Tuesday October 14 was our first clinic day at McMaster. We met with our CF doctor (Dr Pedder), primary nurse (Val Carroll) and the rest of the CF team (a dietician, who is very important for keeping up Katie’s body

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Cystic Diagnosis Part 6: My nightmare the night after the diagnosis

The night after we received news that Katie had cystic fibrosis, I had a nightmare. Here are the notes that I took that morning after I woke up: I dreamt that I heard Noah calling me from outside. Now I

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Cystic Diagnosis Part 5: Diagnosis

On Tuesday afternoon (Sept 30) just after noon, Julie called me at work, crying. She said the CF clinic just called, and Katie’s results came back positive for CF. I took the afternoon off. Shortly after I got home, the

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Cystic Diagnosis Part 4: Sweat Test at the CF Clinic

On Thurs Sept 25, we visited the CF clinic at McMaster Hospital. Sweat Test machine at McMaster The clinic at Mac was fantastic. The CF test itself is pretty archaic, but, apparently, it’s also extremely accurate. They refer to Mac’s

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