Categories
cystic fibrosis

Great Strides 2010 Thank You Party

Ever since Katie was first diagnosed with Cystic Fibrosis two years ago, the love and support of our family and friends has been phenomenal. We have been extremely grateful to everyone that has offered prayers, words of encouragement, friendship and support as we adjusted to living life with a fatal disease always lurking in the […]

Categories
cystic fibrosis

Hello Fall and our new blog look & feel

I know that I said I’d post on this blog over the summer. I had good intentions… but… that didn’t work out so well. My apologies. Regardless… welcome to the new look and feel for BreathingAsAFamily.org. I have consolidated all of my blogs on wordpress. I was hosting things on blogger, but, after much deliberation, […]

Categories
cystic fibrosis

Do you ever think about losing your child?

For the last few months, Julie and I have been following the story of Eva Markvoort. Eva has been a courageous and energetic CF patient with an infectious sense of hope. We’ve clung to the hope that Eva would succeed against the odds and triumph over the same disease that our daughter Katie has. The […]

Categories
cystic fibrosis

Great Strides 2010 fundraising and awareness

I just want to say thank you to the many people who have donated or signed up to walk with us on Sunday May 30 2010. You have been very generous and we appreciate all of the love and support. And, I’d like to share a recent blog post that very succinctly summarizes the video […]

Categories
cystic fibrosis

Great Strides 2010 – join us in fundraising for a cure!

Folks, As many of you know, my daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time. On Sunday May 30 2010, the Canadian Cystic Fibrosis Foundation will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and […]