Categories
cystic fibrosis

Happy New Year!

Yes, I know it’s already January 13th. I’m a bit late on my first post of the new year. 🙂 The last few months have been rather hectic. Plenty going on. And yes, I have neglected our blog for far too long. For that, I apologize. So, to get everyone up to speed, here’s what […]

Categories
cystic fibrosis

I’m writing a book – “Cystic Diagnosis”

We found out that our daughter Katie had CF on September 30 2008. Katie was 17 months old at the time. We were devastated. We were afraid. We were concerned for our child. We worried if our other child might have CF. We wondered what the future would bring. We wondered if we would have […]

Categories
cystic fibrosis

CF in the news: “The fear factor in health fundraising” in CMAJ (Aug 2010)

The Canadian Medical Association Journal (CMAJ) recently published an article and two letters (see footnotes at the end of this post) that dispute (one of the letters defends the marketing) the accuracy of the ads depiction of living with CF, and thus, question the effectiveness and appropriateness of the advertising campaigns themselves. The criticism is […]

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cystic fibrosis

CF in the news: “Surviving cystic fibrosis” in Macleans (Aug 31 2010)

Thanks to Cathy Gulli and Macleans for sharing this story about Ashley Donelle, a 20-something Montreal woman with Cystic Fibrosis who recently underwent a double lung transplant. The article charts Ashley’s suffering with CF, the transplant that saved her life and the ongoing health concerns that come with being a transplant survivor. The article also […]

Categories
cystic fibrosis

Great Strides 2010 Thank You Party

Ever since Katie was first diagnosed with Cystic Fibrosis two years ago, the love and support of our family and friends has been phenomenal. We have been extremely grateful to everyone that has offered prayers, words of encouragement, friendship and support as we adjusted to living life with a fatal disease always lurking in the […]