The night after we received news that Katie had cystic fibrosis, I had a nightmare. Here are the notes that I took that morning after I woke up: I dreamt that I heard Noah calling me from outside. Now I am frightened that I may lose both of my children… It was a faint crying, […]
On Tuesday afternoon (Sept 30) just after noon, Julie called me at work, crying. She said the CF clinic just called, and Katie’s results came back positive for CF. I took the afternoon off. Shortly after I got home, the Celiac doctor (the one that referred us to the CF clinic) called us from his […]
On Thurs Sept 25, we visited the CF clinic at McMaster Hospital. Sweat Test machine at McMaster The clinic at Mac was fantastic. The CF test itself is pretty archaic, but, apparently, it’s also extremely accurate. They refer to Mac’s test as “the gold standard”. And, I’ve been told that if you get a CF […]
McMaster Children’s Hospital Picking up where we left off, Julie visited our family doctor the following Monday (Aug 25). The doctor reiterated #s 1 to 3 that we were told at the emergency room the Friday prior: It’s random. It won’t happen again. Don’t worry about it. Celiac disease – dietary disorder where the body […]
Katie’s symptoms were subtle at first. She had colds that took a long time to shake. She had a hard time sleeping at night when she was sick with colds. Looking back, before her diagnosis, she had a LOT of sleepless nights. She was diagnosed at 17 months of age, and up until that point, […]
Todd H Dow 