Folks, As many of you know, my daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time. On Sunday May 30 2010, the Canadian Cystic Fibrosis Foundation will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and […]
Month: May 2010
Tuesday October 14 was our first clinic day at McMaster. We met with our CF doctor (Dr Pedder), primary nurse (Val Carroll) and the rest of the CF team (a dietician, who is very important for keeping up Katie’s body weight, a physiotherapist for coaching us on Katie’s physical therapy (for now, that means chest […]
The night after we received news that Katie had cystic fibrosis, I had a nightmare. Here are the notes that I took that morning after I woke up: I dreamt that I heard Noah calling me from outside. Now I am frightened that I may lose both of my children… It was a faint crying, […]
On Tuesday afternoon (Sept 30) just after noon, Julie called me at work, crying. She said the CF clinic just called, and Katie’s results came back positive for CF. I took the afternoon off. Shortly after I got home, the Celiac doctor (the one that referred us to the CF clinic) called us from his […]
On Thurs Sept 25, we visited the CF clinic at McMaster Hospital. Sweat Test machine at McMaster The clinic at Mac was fantastic. The CF test itself is pretty archaic, but, apparently, it’s also extremely accurate. They refer to Mac’s test as “the gold standard”. And, I’ve been told that if you get a CF […]
Todd H Dow 