My daughter Katie was diagnosed with Cystic Fibrosis on Tuesday September 30 2008. Life changed for our family that day. This post series is a documentary of our family’s experiences in the time leading up to that diagnosis. Writing these posts have been a cleansing experience for me. Putting my thoughts into words is helping […]
Folks, Just wanted to remind you that May is Cystic Fibrosis Awareness Month. Please do your best to help raise awareness to help fight CF. I’m personally raising awareness by blogging, fundraising and participating in the Great Strides walk on Sunday May 30 2010 at Safari Niagara in Stevensville Ontario. What are you doing to […]
For the last few months, Julie and I have been following the story of Eva Markvoort. Eva has been a courageous and energetic CF patient with an infectious sense of hope. We’ve clung to the hope that Eva would succeed against the odds and triumph over the same disease that our daughter Katie has. The […]
As many in the CF community know, we lost a great CF champion this past week. Eva Markvoort died this past weekend of CF-related complications at the age of 25. Eva has been a courageous and uplifting CF patient who demonstrated hope and love in the way that she strove to raise awareness of Cystic […]
Our Team Katie video for 2010 features the song Breathe, from Matt Scales, a CF patient who died from the disease in 2007 at 28 years of age. Matt’s personal struggle with CF made the song especially poignant, given his intimacy with the disease. You can view more information about Matt and you can also […]
Todd H Dow