In our case, we have chosen to have another child. We have chosen to love this child. We have chosen to care for this child. And we have chosen to face whatever challenges come our way. And, we will embrace technology to the extent that it can help. Medical research has gone a long way […]
Tag: Cystic Fibrosis
And, when I think about the larger challenge of genetic testing, it makes me wonder where do we stop? In the very near future, genetic testing will provide each of us with a window into our “genetic flaws”. I foresee a day in the not so distant future when we’ll be given a printout after […]
We talked to other CF parents. One family we know decided to go ahead with more children despite the risks. Their next child was born with CF. They were plagued by feelings of guilt, pain and anguish but they, like us with Katie, have been comforted by the tremendous love, support and gifts that children […]
Folks, Just wanted to send out a big thank you to everyone that made this year’s Great Strides Cystic Fibrosis fundraiser a HUGE success. Julie and I continue to be overwhelmed by the tremendous outpouring of generosity and encouragement towards this cause. Your contributions, support, prayers and encouragement have been extremely uplifting to us. The […]
Once Katie was diagnosed with CF, genetic testing was done to identify the defective genes that she adopted from Julie and I. In our case, Katie has the most common mutation, “double Delta F508”. This meant that Katie received the same defective gene from both of us, “delta F508”. Thus, Julie and I are both […]
Todd H Dow 