We are expecting our third child any day now. This is an exciting time for us. And, for a while, it was a difficult time as well. Why? Because the odds are 1 in 4 that this baby will be born with Cystic Fibrosis. Some would consider us reckless or ignorant. Others would call us […]
Tag: Cystic Fibrosis
In this series, I’ll be touching on an ethical debate within the CF community – should CF parents have more children? This is not unique to CF though. Other genetic diseases like Sickle Cell Anemia and Huntington’s Disease struggle with this same question. Here’s an overview so that you can follow along: Part 1 – […]
Folks, As many of you know, my daughter Katie has Cystic Fibrosis. Katie was diagnosed with CF on September 30 2008. She was 17 months old at the time. On Sunday May 30 2010, the Canadian Cystic Fibrosis Foundation will be hosting the annual Great Strides walk for cystic fibrosis. We will be walking and […]
Tuesday October 14 was our first clinic day at McMaster. We met with our CF doctor (Dr Pedder), primary nurse (Val Carroll) and the rest of the CF team (a dietician, who is very important for keeping up Katie’s body weight, a physiotherapist for coaching us on Katie’s physical therapy (for now, that means chest […]
The night after we received news that Katie had cystic fibrosis, I had a nightmare. Here are the notes that I took that morning after I woke up: I dreamt that I heard Noah calling me from outside. Now I am frightened that I may lose both of my children… It was a faint crying, […]
Todd H Dow 